Associations around the World

Austria
www.morbus-gaucher-oegg.at
ÖGG – Österreichische Gaucher Gesellschaft
Tumlerstr. 4
A - 4232 Hagenberg,
Tel.: + 43 699/11694107,
email: pichler@liwest.at

Belgium
www.boks.be
Belgische Organisatie voor Kinderen en volwassenen met een Stofwisselingsziekte vzw (BOKS)
A. Nahonlaan 7
9120 Melsele
Belgie

Secretariat:
Floralaan 35A
9120 Beveren
Belgie
Phone: +32 3 775 48 39
Fax: +32 3 775 48 39
email: info@boks.be

Bulgaria
www.gaucher-bg.org
Нациоанална Асоциация на болните от Гоше
България, гр. София 1172, бул. "Драган Цанков" бл. 59-63, вх. 7, ет. 2, ап. 6
Bulgaria
Phone +359 888323748 or +359 878600531
email: r.tomova@yahoo.com

Czech Republic
www.gaucherova-choroba.cz
Občanské sdružení rodičů dětí a dospělých postižených Gaucherovou chorobou
Mládežnická 4,
Karlova Vary 360 05,
Czech Republic
Phone: + 420 777 214 258, + 420 605 165 095
Fax: + 420 35 90 16 566
email: dbartosikova@gmail.com

Denmark
www.gaucherforeningen.dk
c/o Anne-Grethe Lauridsen
Ranunkelvej 2, 4300 Holbæk
Danmark
Phone: +45 4046 4726
email: anne-grethe@gaucherforeningen.dk

Estonia
www.gaucher.ee
Gaucher Association Estonia
Phone: +372 53329370
email: info@gaucher.ee

Finland
Suomen Gaucher Yhdistys
Veitikantie 24 a5
96100 Rovaniemi
Finland
Phone: +358 442912114
email: joparkkinen@gmail.com

France
www.vml-asso.org/les-maladies-lysosomales/toutes-les-maladies/maladie-de-gaucher.html
VAINCRE LES MALADIES LYSOSOMALES (VML)
2 ter avenue France
91300 MASSY
France
Phone : + 33 (0) 1 69 75 40 30
Fax : + 33 (0) 1 60 11 15 83
email: Antispam-scientifique@vml-asso.org

Germany
www.ggd-ev.de
Ferschweiler Strasse 15
54668 Holsthum
Deutschland
Tel: +49 (0)700 / 443 00 443
Fax: +49 (0)3212 1238706
email: mail@ggd-ev.de

Greece
Soon updated

Ireland
www.gaucher.org.uk
Evesham House Business Centre
49-52 Silver Street
Dursley
Gloucestershire
GL11 4ND
United Kingdom
00 44 1453 549231
email: ga@gaucher.org.uk

Israel
www.gaucher.org.il
העמותה הישראלית לגושה (Israeli Gaucher Association)
P.O. Box 33814
Haifa 31338, ISRAEL
Phone: +972-4-9504403

Italy
www.gaucheritalia.org
AssociazioneItaliana Gaucher - ONLUS
Località Il Cellaio 51/b
50066, Reggello (FI)
Italia
Phone: +39 055 8652232
Fax: +39 055 8652232
email: info@gaucheritalia.org

Jordan
جمعية العناية بمرضى غوشيه الخيرية الأردنية
عمان-خلدا ش.سلسمان القرالة رقم 4
Phone +962 65523284
Mobile +962 795596250
Fax +962 53611338
email: gaucher_ja@yahoo.com

Latvia
www.caladrius.lv
RETO SLIMĪBU BIEDRĪBA CALADRIUS
S.Eizenšteina 65-36
Rīga, LV-1079
Latvija
Phone: + 371 29478281
email: rsbc@inbox.lv

Lithuania
www.lga.lt
GOÐË ASOCIACIJA
Vilniaus r. sav. Aviþieniø k. Smilgø g.8
Lithuania
Phone: +370 646 21343, +370 612 86754;
email: info@lga.lt

Macedonia, the Former Yugoslav Republic of
ЖИВОТ СО ПРЕДИЗВИЦИ
Ул. Борис Радосавлевиќ - Гоце бр.12,
7000 Битола,
Р. Македонија
LIFE WITH CHALLENGES
12 Boris Radosavlevikj - Goce Street,
7000 Bitola,
R. Macedonia
Phone: +389 70 705 446
email: vesna.stojmirova@gmail.com

Netherlands
www.stofwisselingsziekten.nl
Patiëntenvereniging Volwassenen en Kinderen met Stofwisselingsziekten
Postbus 664
8011 PJ Zwolle
Phone: +31 38 4201764
Fax +31 38 4201447
email: info@stofwisselingsziekten.nl

Norway
http://sites.google.com/site/gaucherforeningeninorge/
Gaucherforeningen Norge
Storh. 15
8450 Stokmarknes
Norge
+47 913 85 271
email: Gaucher.norge@gmail.com

Poland
www.gaucher.pl
Stowarzyszenie Rodzin osób z choroba Gauchera
ul. Dolna 2a/71
00-774 Warszawa
Poland
Phone + 48 502 516 207
email: wojtek85@poczta.fm

Romania
www.boalagaucher.ro
Fundatia Romana Pentru Bolile Lizozomale
Targu-Jiu, Strada Victoriei, bloc 39, scara 2, apartament 2
Phone: + 40 0744618289 or +40 0744336031
Fax: +40 216551373
email: gaucher.romania@yahoo.com

Russian Federation
www.gaucher.ru
Межрегиональная общественная организация "Содействие инвалидам с детства, страдающим болезнью Гоше и их семьям"
115477, г. Москва, Пролетарский проспект, д.35, кв. 114
Phone:+8-916-597-73-17
Fax: +8 (495)321-70-17
email: marina.terekhova@mail.ru

Serbia
Udruzenje gradjana za pomoc u lecenju obolelih od Goseove bolesti ( UGOS)
Murska 7
Beograd (Belgrade)
Serbia
+381 63 440545
email: gosescg@drenik.net

Slovakia
Partizanska 21, Bardejov, 08501
+421903113188
email: zogo@zogo.sk

Slovenia
www.gaucher-drustvo.si
Društvo bolnikov z gaucherjevo boleznijo Slovenije
Srednja Kanomlja 66
5281 Spodnja Idrija
Slovenia
email: info@gaucher-drustvo.si

South Africa
www.gaucherssa.co.za
Gaucher Society of South Africa.
P O Box 695
Northlands, 2116,
South Africa.
Phone: +27 11 8841782 / +27 11 4408429
Mobile: +27 83 2524384
Fax:+27 11 8840991.
email: sevitz@tiscali.co.za

Spain
www.aeefegaucher.es
ASOCIACIÓN ESPAÑOLA DE ENFERMOS Y FAMILIARES DE LA ENFERMEDAD
c/ Buenos Aires nº 16,
10680 Malpartida de Plasencia, Cáceres,
España.
Phone/Fax: +34 927 45 92 26
email: gaucher@eresmas.com

Sweden
www.morbusgaucher.se
Morbus Gaucherföreningen i Sverige
c/o Magnusson,
Akvilejagången 29
507 52 Borås
Sweden
Phone: + 46-705 1584333
email: lars.em.magnusson@tele2.se

Ukraine
soon updated

United Kingdom
www.gaucher.org.uk
Evesham House Business Centre
48 - 52 Silver Street
Dursley
Gloucestershire
GL11 4ND
United Kingdom
Phone/Fax: +44 1453 549 231
email: tanya@gaucher.org.uk

United States
www.gaucherdisease.org
National Gaucher Foundation, Inc.
2227 Idlewood Road
Suite 6,
Tucker, GA 30084
USA
Phone: + 1 770-934-2910 or +1 800-504-3189
Fax: +1 770-934-2911
email: rhonda@gaucherdisease.org