In the News
-
Cerdelga update
17 September 2014
Following the Food and Drug Administration (FDA) approval of Cerdelga as an oral treatment for certain adult Gaucher disease type 1 patients in Aug...
Read more....
-
Expression of Hope III
17 September 2014
Genzyme a Sanofi company have recently announced the launch of their “Expression of Hope III” Program to Build Awareness of Lysosomal S...
Read more....
-
British London 10k Run 2015
15 September 2014
Are you looking for your next sporting challenge? The Association have secured six places for the British London 10k run on Sunday 12th July 2015....
Read more....